Sunday, March 8, 2015

"Diagnosis"

We saw two PANDAS specialists this week, both of whom stated our daughter fits the criteria for PANDAS quite well. In fact, the second one said our daughter could be the "poster child" for PANDAS. But diagnosing PANDAS is difficult because it is a syndrome with a clinical diagnosis based on history, reaction to meds, blood tests, and many other things. There isn't a single definitive test that can be run. 

The second doctor we saw said, "I'm sorry to meet you. Your story sucks." I guess it's good he didn't sugar coat anything. But he also said it's good we are starting to treat this when she is so young, because it is easier to treat the little ones.

There is hope. But that doesn't always make it easier.

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